Part-time Communications and Outreach Coordinator

MISSION Our mission is to advance research, drug development, and possible treatments for GM1 gangliosidosis, an ultra-rare lysosomal storage disease that primarily impacts babies and children. GM1 destroys the brain and spinal cord and is ultimately fatal. Our work is guided by the belief that all those suffering from this horrendous disease deserve treatment. Treatments and discoveries associated with rare diseases can contribute to advancements with broad ramifications to the entire field of…

Posted Aug 4, 2026 · via idealist · listing belongs to the original publisher